Resources for patients

Download these helpful patient education resources

Preparing for Your Visit

Prepare for a visit with your healthcare provider with this helpful discussion guide.

Patient Brochure

Learn more about HAE, how RUCONEST can help treat acute HAE attacks, and how RUCONEST SOLUTIONS can provide you with support throughout your treatment journey.

Self-Administration Guide

A step-by-step self-administration guide designed to help you treat your HAE attacks with RUCONEST.

RUCONEST information contact form

If you want to learn more about HAE, sign up now to receive up-to-date information about RUCONEST and HAE from Pharming Healthcare, Inc. or any of the company affiliates. You can decide how you would like to receive information by filling out the appropriate sections.

Please complete the information below.

Choose which best describes you:
Are you currently taking RUCONEST:

By providing my information, I consent to receiving marketing and promotional communications related to HAE, HAE products, and other information from Pharming Healthcare, Inc. I hereby give consent to Pharming Healthcare, Inc., its affiliates, and their agents and representatives, to send communications and information to me via the contact information I have provided above.

RUCONEST INDICATION (USES)

Ruconest is an injectable medicine that is used to treat acute angioedema attacks in adult and adolescent patients with Hereditary Angioedema (HAE).

IMPORTANT SAFETY INFORMATION

Do not use RUCONEST if you have experienced life-threatening immediate hypersensitivity reactions, including anaphylaxis, to RUCONEST or to any other C1 esterase inhibitor (C1-INH) product. Call your healthcare professional or the emergency department right away if you experience: wheezing, difficulty breathing, chest tightness, turning blue (look at lips and gums), fast heartbeat, swelling, faintness, rash or hives.

Do not use RUCONEST if you have a known or suspected allergy to rabbits or rabbit-derived products. If you do not have a known rabbit allergy, testing is not required.

RUCONEST is not indicated for use in children under the age of 13 years.

Tell your healthcare provider about all your medical conditions, including if you have a known allergy to rabbits. Tell your healthcare provider about any other medications you are taking, as some medications, such as birth control pills and certain androgens, can increase risk of clotting problems. Also tell your healthcare provider if you are pregnant, breastfeeding, or planning to do so.

RUCONEST has not been evaluated in pregnant women or nursing mothers. You and your healthcare provider will decide if RUCONEST is right for you.

RUCONEST will be dissolved in sterile water and slowly injected into your vein (intravenous injection).

The most common side effects patients experienced during clinical studies include headache, nausea and diarrhea.

These are not all the possible side effects of RUCONEST.
If any of the side effects get serious, or if you notice any side effects not listed here, please inform your healthcare provider or pharmacist. You can also report side effects to the FDA at 1-800-FDA-1088 or visit www.fda.gov/medwatch.

For product information, adverse event reports, and product complaint reports, please contact Pharming U.S. toll-free:

(844) 474-2764 Main corporate number

(800) 930-5221 Adverse events, product complaints, medical information

Please click here for full Prescribing Information, including Patient Product Information.

This program is sponsored by Pharming and is intended for HAE patients and their caregivers, spouses and/or families. Only healthcare professionals who are or may be involved in providing HAE patient care or product recommendations may also attend this non-CME educational program. Healthcare professionals may not bring their own guests or spouses to the program unless they meet requirements noted previously. Please note: Healthcare professionals in attendance will have their name and the value of any meal/refreshment reported as required by federal and state laws. Any healthcare professionals maintaining a license to practice medicine in Minnesota, Vermont or New Jersey must notify the Pharming representative upon sign-in.